Some of you may recall that my oldest daughter was diagnosed with Ehlers-Danlos Syndrome (EDS) in July of 2015. This week my two youngest were also diagnosed. I'm now the mama to at least three little zebras. We knew it was coming. We weren't shocked or surprised but it feels so official now. ...
3 Tips On Advocating For Your Child’s Health
Parents of children having medical difficulties often ask themselves, "What can I do so my child gets the help that he or she needs?" Oftentimes we will look to health care providers, doctors or therapists to advocate for our children but no one feels the pain of their children like mom and dad. ...
Losing Friends due to Chronic Illness
Chronic illness has a way of exposing true friends out from among the frauds. I wish this wasn't true because being alone isn't a fun place to be. It seems like when things start to snowball and maybe you get a diagnosis or while you're on the journey, that friends would pull tight around a person. ...
My Child has Ehlers-Danlos Syndrome|EDS Awareness
It has been four days since we heard the official, "You do have this condition of Ehlers-Danlos Syndrome. You have the hypermobility type but we do want to send you for an echocardiogram every three years to keep an eye on your heart." My child has a genetic condition. There is no cure. ...