I don't know what her future holds and honestly? I'm okay with that. God does know her future and that's good enough for me! Someone asked me recently how the future looked for my daughters. You know, since the Ehlers-Danlos Syndrome(EDS) diagnosis. I admit, I was slightly taken aback. It ...
What is Ehlers-Danlos Syndrome?|EDS Awareness
Some of you may recall that my oldest daughter was diagnosed with Ehlers-Danlos Syndrome (EDS) in July of 2015. This week my two youngest were also diagnosed. I'm now the mama to at least three little zebras. We knew it was coming. We weren't shocked or surprised but it feels so official now. ...
3 Tips On Advocating For Your Child’s Health
Parents of children having medical difficulties often ask themselves, "What can I do so my child gets the help that he or she needs?" Oftentimes we will look to health care providers, doctors or therapists to advocate for our children but no one feels the pain of their children like mom and dad. ...
My Child has Ehlers-Danlos Syndrome|EDS Awareness
It has been four days since we heard the official, "You do have this condition of Ehlers-Danlos Syndrome. You have the hypermobility type but we do want to send you for an echocardiogram every three years to keep an eye on your heart." My child has a genetic condition. There is no cure. ...